Tja, wat zal ik zeggen: het is de harde werkelijkheid, ook voor mij. Ik heb net even een paar dingen opgeruimd in huis. En ik wil nog zoveel meer doen, dan alleen opruimen. De stofwolken worden nu echt te groot. Over 1,5 week gaan we op vakantie en ik wil het huis wel netjes achterlaten. Ik ben gewoon al twee weken bezig om dit voor elkaar te krijgen. Maar ik loop er continue achteraan. File in het washok etc. Ik weet dat ik het niet alleen hoef te doen, maar ik word ook zo moe van mezelf om iedere keer dank je wel te moeten zeggen tegen mijn omgeving, omdat ze me voor de zoveelste keer geholpen hebben. Nee, dit is geen leven zo! Ik weet het nu zeker, ik ga door totdat die vermoeidheid over is. Ik accepteer dit nog niet als de status quo! Meiden, hou ook vol. Er moet vroeg of laat een oplossing komen voor deze ziekte!
16 april 2009 ,
04:02
natalie
Ik weet hoe het is benal een jaar vreselijk moe, maar weetpas sins 5 weken dat ik Crohn heb. heb dan ook op het moment sonde voding maar het valt vie tegen word moe waker ga moe naar bed loop paar keer door huis ga dan weer daar op de bank liggen dan weer zitten. normaal trek ik me ie zo veel van m'n vermoedheid aan en doe ik gewoon wakleine dingetjes maar nu is m'n weerstand zo zwak dat ik dan een paar dagen in bed kan liggen met buikpijn en etc. dus moet me wel rustig houden :( . en met namen eten zou zo graag iets van de frietuur willen of chinees of iets dergelijks en dat valt egt vies tegen het geeft me wel hoop dat al ik een aanal mensen uit de flmpjes zie die weer vrij veel kunnen eten!
22 april 2009 ,
01:48
Suzanne
Ik ben niet de enige...wat een herkenning, wat een opluchting. Zat vandaag in de wachtkamer op MDL en zag voor het eerst de folder van deze site, wat ben ik daar dankbaar voor.
Eindelijk valt bij mij het kwartje,en leg ik de link tussen al mijn klachten.
(hoewel ik niet begrijp dat een huisarts dit niet doet) ik heb al Crohn sinds mijn 13e. ik ben nu 37 jaar. mijn klachten van moe, pijn in gewrichten en huid aandoeningen (linchen planus) . maar vooral moe moe moe.Nemen de laatste tijd steeds meer toe. Ik heb altijd doorgeworsteld met werken, maar ik kan niet meer. hier is echter geen enkele vorm van begrip voor. (UWV) . momenteel werk ik nog steeds. ook geen ziektewet of zo. maar ik ga hier aan kapot. wat ik eigenlijk wil zeggen is..Bedankt voor deze site, voor mij erkenning en dat het niet aan mij ligt. maar aan die Crohn.
30 september 2009 ,
10:59
Miranda
Het is voor mij ook zo herkenbaar, altijd maar moe........waar ik ook zo gefrustreerd van raak is in tijden dat het redelijk goed met je gaat, dus geen diaree, bloedwaarden goed, dat je toch zoooooooooo moe blijft. Maar ja luitjes we ademenen gewoon maar door en proberenalles maar zo goed als mogelijk vol te houden
01 februari 2010 ,
02:43
Danielle
Hey...
Ik heb een vraag! Ik heb de ziekte van Crohn en ben 27 jaar.
Ik ben altijd moe en heb een weerstand van een piepkuiken...ik spuit humira!
Mijn vraag is of jullie dit ook hebben, wanneer de ziekte in het bloed niet ernstig actief lijkt... ik ben namelijk net bij de mdl arts geweest en mijn CPU was wel iets verhoogd, maar niet zorgbarend...
Ik snap niet dat ik me toch ziek voel, terwijl mijn ziekte niet erg actief lijkt! Stel ik me dan aan ofzo??? Ik snap het niet en hoop op een reactie!!!
Liefs Danielle
21 maart 2010 ,
12:28
gina
hoi allemaal
we stellen ons niet aan we zijn gewoon moe ook al onze crohnie zich rustig houd
van buiten gezonde mensen zo tezien maar van binnen een puinhoop
mensen die nog zo graag zoveel dingen willen maar het niet kunnen
1 avond stappen en laat naar bed kost mij wel 3 dagen om weer bij tekomen
maar met z'n allen zijn we sterk
liefs voor allemaal gina
Всем привет
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Reacties (37)
(hoewel ik niet begrijp dat een huisarts dit niet doet) ik heb al Crohn sinds mijn 13e. ik ben nu 37 jaar. mijn klachten van moe, pijn in gewrichten en huid aandoeningen (linchen planus) . maar vooral moe moe moe.Nemen de laatste tijd steeds meer toe. Ik heb altijd doorgeworsteld met werken, maar ik kan niet meer. hier is echter geen enkele vorm van begrip voor. (UWV) . momenteel werk ik nog steeds. ook geen ziektewet of zo. maar ik ga hier aan kapot. wat ik eigenlijk wil zeggen is..Bedankt voor deze site, voor mij erkenning en dat het niet aan mij ligt. maar aan die Crohn.
Ik heb een vraag! Ik heb de ziekte van Crohn en ben 27 jaar.
Ik ben altijd moe en heb een weerstand van een piepkuiken...ik spuit humira!
Mijn vraag is of jullie dit ook hebben, wanneer de ziekte in het bloed niet ernstig actief lijkt... ik ben namelijk net bij de mdl arts geweest en mijn CPU was wel iets verhoogd, maar niet zorgbarend...
Ik snap niet dat ik me toch ziek voel, terwijl mijn ziekte niet erg actief lijkt! Stel ik me dan aan ofzo??? Ik snap het niet en hoop op een reactie!!!
Liefs Danielle
we stellen ons niet aan we zijn gewoon moe ook al onze crohnie zich rustig houd
van buiten gezonde mensen zo tezien maar van binnen een puinhoop
mensen die nog zo graag zoveel dingen willen maar het niet kunnen
1 avond stappen en laat naar bed kost mij wel 3 dagen om weer bij tekomen
maar met z'n allen zijn we sterk
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